One of the things I have found that has helped the most is being your own advocate. You need to speak up.
There's a lot of resources out there for this condition, which I'm fortunate for, and there's a great community supporting patients and caregivers.
When you have pulmonary hypertension and you are newly diagnosed, what I advise the most to any of my peers is to look for support groups.
I'm leaving you with this: Don't let it defeat you. Kick its butt. Take names.
PAH causes high blood pressure in the blood vessels, which are present in the heart and lungs.
Navigating PAH Pathways is an interactive, educational, online program specifically created for patients with pulmonary arterial hypertension (PAH). Each program is led by a PAH provider.
The Care4Today® Connect app can help with medication reminders, and the tracking of your data and daily experiences with PAH so it's easier to share with your doctor.