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PAH and
Your Body

After Your Diagnosis — What Next?

Click on each section of the cycle below to learn more about living with PAH.

Be Honest With Your Healthcare Provider

Make sure to maintain an open line of communication with your doctor, so they can work with you to better understand your evolving PAH status.

PAH Over Time

The strain PAH takes on your heart and lungs can cause symptoms like:

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Chest pain

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Shortness
of breath

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Fatigue

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Swollen ankles
or legs

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Dizziness

These symptoms may feel mild at first but can get worse over time, often without you noticing. It’s sometimes called a “silent progression” because it may be hard to feel when it’s getting worse.

Your doctor can monitor several PAH data points to determine how your PAH is changing. These may include:

  • Heart rate
  • Blood pressure
  • BNP/NT-proBNP (measured via blood test)
  • eGFR (measured via blood test)
  • WHO Functional Class
  • 6-Minute Walk Test

Although PAH is progressive, you can work with your healthcare team on a treatment plan to help delay progression as much as possible.